Celine Dion now: Singer says illness 'has been one of the hardest experiences of my life'

ByDan Heching, CNN
Monday, March 18, 2024
Celine Dion speaks out on living with stiff person syndrome
Celine Dion is focusing on her family and the future as she continues to live with a health challenge.

CHICAGO -- Celine Dion is focusing on her family and the future as she continues to live with a health challenge.

The legendary entertainer marked International Stiff Person Syndrome Awareness Day on March 15 with an Instagram post in which she addressed her autoimmune disorder, saying it "has been one of the hardest experiences of my life."

Dion added that she remains "determined to one day get back onto the stage and to live as normal of a life as possible."

A photo of Dion and her three sons - René-Charles and twins Nelson and Eddy - accompanied her heartfelt message, CNN reported.

Dion shared her three children with her late husband René Angélil, who died in 2016.

Stiff person syndrome (SPS) is a rare neurological condition that causes spasms and muscle rigidity, with heightened sensitivity to stimuli such as sound, lights and emotional distress that can bring on the muscle spasms, according to the National Institute of Neurological Disorders and Stroke.

SEE MORE: Celine Dion health: Singer's sister says Grammy winner 'doesn't have control over her muscles'

Dion first shared her diagnosis in 2022. She has since stopped touring and performing live.

A forthcoming documentary on the "My Heart Will Go On" singer set to stream on Prime Video will document her journey back to the stage.

On Friday, Dion wrote in her caption that she is sending her "encouragement and support to all those around the world that have been affected by SPS."

"I want you to know you can do it! We can do it!" she concluded.

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